Sep 22, 2008
Sep 16, 2008
My Grand daughter Katelyn got her new leg braces today, and she stood alone for the first time in her little life. Katelyn, never cared if she could walk or not, until she started school last year, and other children made fun of her and hurt her feelings. She felt different for the first time in her life. Although her 2 brothers, cousins and friends she grew up around could all walk, run, jump, and ride bikes , she never viewed herself as different. They all treated her just like they would if could walk. But once she enter a world where the other children that hadn't known her all her life suddenly treated has though she was different, she quickly became depressed and talked about how she wanted to walk. She had been in therapy for 3-4 tears but hated it and just didn't want to go, the therapist dicided that they would just wait until she was ready. It has took 6 months for her new braces to be made and they received them today. She was able to stand alone for the first time. But she didn't get to keep the braces because they do need some adjustments. But, I'm just so overjoyed, that I can't find the words to describe how I feel. and can hardly type for crying tears of joy. WOW, what a change this will make in all of our lives. Her mother doesn't even know yet, she's still at work, and had no idea that her braces would arrive today, neither did I for that fact. Katelyn's wheelchair is so heavy, I couldn't lift it. So, most of the time I just toted her and used her stroller. Which was fine, except I also had her younger brother and cousin both age 1 now, which I keep while my Daughters work. And it was just so difficult to have 3 children that couldn't walk. Any time I went somewhere I had to carry all 3 to the car and use 2 strollers, one was a double stroller. Now I guess you're wondering how I pushed those 2 strollers. Well, I would push the big one and Katelyn older brother who is 10 would push hers. Now both the babies are walking and Katelyn is off to a good start too. I mean to be able to stand alone her first time wearing her braces is a miracle. Katelyn has always had leg braces but could never stand with them. Since they have moved down here she has had new doctors, who have discovered what was preventing her from standing and redesigned her braces to fit her needs. It seems it will make her dream of walking come true. I so happy for her, she is so sweet, and all I want is for her to be happy. I love her with all my heart and couldn't bear seeing her so sad. Children think that mom, dad, or nanna is suppose to make things better, and I just never knew how to tell her she may never walk, so I would just tell her God made her exactly the way he wanted her, and that she is special, and never think you can't do the things that others do, that you just have to do it in a differnet way. Now, I know in my heart that she will have her dream come true. And it's just so overwhelming for me, I just can't take it all in. We've become so adapted to the thought that she would never walk that you can't imagine what this must mean to us. It all still hasn't sunk in, as I writing, I am realizing all the possiblity this will mean, and I'm just floating. And undescibable weight that I never knew I had has been suddenly lifted and no words can described this joy. I'll have to come back and address this later, I sudden am so light headed.
Sep 13, 2008
We got darling grand daughter Katelyn's MRI results back and she has a tethered spine. They can repair this with surgery which will done at the end of the school year, because of the time it takes for recovery. The good news is the Drs. say she will be walking by the time she is a teenager. Katelyn has never been able to walk. She has no feeling in either of her feet, and both her hips stay dislocated. She has endured many major surguries since her birth. She had one right at birth and one when she was only a few months old that kept her in a full body cast for 6 months.And several more on her legs and feet. But each surgery has improved her mobility. She wouldn't be crawling or pulling up today, had she not had them. Now this spinal surgery will correct her spine and keep it from becomeing attached to her tail like an anchor with would cause lost of the abilities she has. So, we are definitely going through with this surgery. We are just thrilled for her. She has been through a lot of physical therapy, but they determined that it wasn't going to help because she found it easier to crawl and wasn't interested in walking. But now that she has started school, she has decided she wants to walk, and they have fitted her for new leg braces and we should receive them any day.
Katlyn absolutely loves to sew, so I bought her a sewing machine for Christmas. When she sews on mine she pushes the pedal with one hand and guides with the other. But I plan to set hers up so that she will be able to push the pedal with the side of her knee. She is a happy and extremely bright young girl, who can out read children twice her age. She is only 6 but a big book worm. I have always tried to focus on the things that she can do rather then dwell on the things she can't. Against her mother wishes, who kept telling me Katelyn can't swim momma. Well I just didn't believe it. I knew durn well since she could move her arms and legs she could swim and sure enough she's a little fish in the water. I took her in and told her now you just kick those feet and pedal them arms and you can learn to swim like nanny. And Viola she was swimming. I think it is a great form of exercise for her. I know all (or should I say most) parents are over protective of their chilren, but that's what nana's are for. . I like when she spread her little angel wings and flies high. I'm so glad they moved down here last year, I think it has been very liberateing for my grand daughter to not be so sheltered from to world. I never think well we can't go do this or that, I think how can I make this so she can enjoy the same things that other children enjoy. We go to the rodeo, and she rides the ponies, we go to white water and I ride the water rides with her, I take her anywhere I would take any of my other grandchildren. In her own words "We are best buddies". My moto is if we can do it she can do it, only she might have to do it a little differently we would. So, never focus on the can't and focus on the cans. One of the best things my father always told me was those famous words "Can't never could do nothing".
Sep 1, 2008
I know I haven't posted in a while but have been very busy, not too busy to post just most of the projects I have been working on are swaps with other that I just can't show pictures and details of. I really want to show everyone what I've been up to but most of it will just have to wait. I do have one little thing I made that might seem sort of dorky, but do you just ever get in the mood to make something off the top of your head, something different, that you just don't have to do just so-so. Well, I find myself in these situations where I just get overwhelmed with what I have to do and just don't want to but once I make something just for the fun of it, I'm on a roll and have completed many of the things that I had hanging over my head. Try it sometime maybe it will work for you too. After making this little wild and crazy bird box for a friend, who has inspired me to try new things, I managed to complete 3 other projects that I just kept putting off. I felt so good today, having those out of the way I have stated another really cute mini wall hanging. I post a pic of it when it's completed tomorrow. But for now here is the little dorky bird box, that was so much fun to make, and I do learn from making these small projects. I do hope she likes it, or at least get a good laugh out of it. Everyone needs something to smile about sometimes, and aren't surprises fun, well at least the good surprises.
Labels: sewing crafts